Stomas can be both life-saving and life-changing, but to date not enough has been invested in research focusing on patients who have them.
We’re proud and excited to have teamed up with Ileostomy Association and the Kingston Trust to support two new projects looking specifically at ileostomy. Ileostomy Association and Kingston Trust are jointly funding each study, while the application and peer review processes were handled by BDRF.
The two projects look at very different aspects of stoma surgery.
The first is concerned with how communication between patient and surgeon around the decision to form a stoma can be improved. It is crucial that patients don’t feel stigmatised by the fact they need a stoma, and the way this decision is communicated by their surgeon is absolutely fundamental. Many stoma patients feel that negative perceptions and stigma were one of the toughest challenges they faced, with some feeling like clinicians viewed stoma formation as a last resort or treatment ‘failure’.
We want to change that. Full information on the work is available here
The second project looks at the possibility for faecal transplants to help improve recovery after stoma reversal in people with rectal cancer. It often takes a long time for patients who have had a temporary stoma to see their bowel return to normal function, with many symptoms like diarrhoea causing major problems for a long time.
We think this could be improved through faecal microbiota transplantation, which means putting the bacteria from someone else’s stool into the bowel. This would be done through the stoma before the stoma is closed. But first, we need to find out whether people would find this treatment acceptable, what might make them more or less likely to agree to it and what information they would want about the treatment before they accepted it. Full details are available here.
Peter Rowbottom CEO of BDRF comments;
“Our huge appreciation goes to the Ileostomy Association and the Kingston Trust for supporting these vital research projects. Improving outcomes for people with an ileostomy is high on our agenda here at BDRF and we look forward to seeing how both these projects progress”
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