Following a call to patients of bowel disease earlier this year to complete a quick survey to help BDRF with it’s strategy development, we are pleased to be able to announce the interim results.
The survey was completed by 207 people and done so anonymously. We would like to very much thank each and every one of you for taking the time to complete the study and to the following organisations for helping us to promote participation:
- Beating Bowel Cancer
- Colostomy Association
- Crohn’s and Colitis UK
- Ileostomy and Internal Pouch Association
- The Kingston Trust
We have presented a selection of the findings below. The results are fascinating and in particular, the many comments that we received to the questions about fears and distressing aspects.
A team of BDRF researchers is now doing some further analysis on this and we will use this information to further aid our strategy developments.
We firmly believe that patients, their families and those that care for them should be at the very forefront of our research – and our work very much centers around developing the best treatments we can and working towards one day finding a cure.
If you would like to participate in the next BDRF patient research survey then please do get in touch with us and we will keep you updated.
MANY THANKS once again to all who took part – we hope you will take part again in future surveys.
Which of the following conditions do you have?
Have you taken part in a medical research project or a clinical trial before?
In your opinion which areas of research do you consider to be most important?
What is the most distressing aspect of your condition?
What is your greatest fear in terms of your condition?
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